Queen No Fun

I have a very particular insecurity that being chronically ill has helped me become much more consciously aware of recently. Years of turning down invitations to get togethers, going out but leaving early, or asking for the tv to be less loud, less bright, in fact just turn everything off! … it has all convinced me that I am the Queen of No Fun. Zero fun, in fact. When everything I do is forged through the added barrier of pain and discomfort, it often feels as if I have no energy left to spare for much needed levity. Because of this frequent depletion of energy, my insecurity has told me I am boring and not fun to be around, whatsoever.

To be honest, I don’t know if I was ever that much fun to begin with. I can’t tell you how many times I’ve shown up to a place, where friends or family have already gathered, with a scowl on my face, even though I was excited to be there and to see everyone. Let me take a few minutes to be a fly on the wall, get the lay of the land, and get settled in and then Happy Me will maybe appear. If I don’t get that time it’s a lot harder to relax, enjoy myself, and not make everyone else around me cranky too. It’s only now that I’m actually putting words to this annoying no-fun emotion that’s been getting in my way for years! Hopefully I can work around it now that I’ve really identified it because it’s a negative experience that’s caused me to really be no fun.

Also, being in a larger body for years meant that I often subconsciously avoided being more boisterous in public so that no one would notice me. I was “fun” as a younger drunken slut, sure, but that was always tied up in how much I sought male attention during the first few years of non-monogamy (haha, ok now too, fine). I’ve convinced others, but worse myself, that I’ve not been interested in all sorts of probably fun activities over the years, simply because I didn’t want to be noticed doing them. If you said that society brought me up to think of my always fat body as a thing ne’er to be seen, I’d definitely agree. Never to be noticed. Not to demand attention of others. So I leaned heavily into being more invisible in certain situations. This insecurity – and admittedly Steph rarely wanting to try new things – has caused me to not participate in lots of stuff over the years. It’s why I completely failed at getting any when we hosted a sexy party for my birthday a few years ok. In some circumstances, I am absolutely terrible at being the center of attention and, well, ruin the fun.

Most of my time on the planet can be divided into my two main modes of existence. The first is where I want all of the attention at any given time; I love this mode! It’s not that I want all of the attention in that mode always, but instead that I am ready for all of it should the mood strike the person or people I’m with. It’s usually a one-person at a time thing though, which might be why I don’t seek it out with groups of people I know.

The second, and much more frequent mode is when I don’t even want to be perceived. This is actually crucial to my “no fun” persona and I wish I didn’t feel it. I can be doing something so completely innocuous; maybe I’m writing a post like this one, grabbing a snack, or searching for a book to read. Someone, usually Steph or Jory as they’re the people I see the most, will simply notice me. Maybe they’ll start talking or casually asking me what I’m up to. In those moments, I feel myself recoiling and I really don’t know why. It’s not that I don’t want to talk to them or that I’m embarrassed to be doing whatever I’m doing; I simply want to be in that moment without being noticed. I want to be invisible and just float around, doing my thing. That’s where I’ve trained myself to find the most comfort and safety.

So, instead of answering the questions or being a kind and responsive human being when noticed, I get snarky and unkind in my responses, almost angry, as if it’s so unbelievably offensive that a loved one would want to engage with me while I’m obviously not even there. I rarely catch myself before it happens and the end result is always the same. I’ve been an asshole and feel confusingly resentful that my invisibility cloak somehow stopped working while the other person is reminded that I am a no fun snake, poised to bite at any opportunity. In reality it has little to do with them. It’s all about me wishing to hide. Yes, this is something I definitely need to work on! Perhaps too I also need to explain it to my people, to help them understand what is happening in my weirdo brain in those moments. That I’m not actually a no-fun little weasel, who hisses at anyone who dares interact with her as she just wants to sneak past and not bother anyone. You see, she’s just so used to bothering people thanks to pain and all of the requirements she needs to exist comfortably and feels bad about it. “Can you turn the volume down? Can the lights be off? Can you get me a pill?”

Chronic pain has for sure made moments of fun harder for me to find or recognize. Additionally, and as you’re well aware of, the pandemic has done all it can to suck joy out of everything, though I’m still working at seeing the joy in as many places as possible to counter this. It’s unbelievably hard though, for all of us. My body’s stress response to the pandemic has been raising my starting pain point to a much higher level. It’s meant I’ve often had a headache and/ or body flare-up for weeks or months on end while having to deal with all of the expectations of the world on top of that. Capitalism demands productivity. Relationships demand nurturing and care. Pain demands the most of me, and the first thing to fall victim to it is often my happiness. Fun. Laughter. Joy.

This all sounds disastrous, I know, but there is a new light shining on me lately (not a blue light, thankfully; that would give me a headache). The past few months that I’ve spent working on disconnecting my identify from my illnesses has been a great help for me in terms of recognizing how little fun I was allowing myself. I use that word “allowing” on purpose. It might feel like it’s been out of my control and, to some degree, it has, but I’ve been really working hard to intentionally seek out fun on all levels big and small, since my revelation back in September that I am not my illness. Realizing that my illnesses are “a thing I suffer from” vs. “who I am” has reminded me that I am just as entitled to having and being fun as the next person. When you hurt all the time, it’s easy for your reality to become distorted. It’s easy to take it personally, like it must be my fault that I deal with this all the time. It used to be really easy to convince me that I don’t deserve fun. That I’m broken. Weighing everyone down. I should be suffering to make up for how annoying I am to take care of.

A few things have been helping me shed that very heavy cloak of self-loathing and insecurity and I’ll share them with you now. The first thing is the revelation I just mentioned. Since disconnecting my illness from my identity, I’ve felt an awareness of the vastness of … possibility! While the pandemic has kept many things on hold and especially uncertain in the recent weeks of Omicron, I am still feeling excited about all the good times that are to come in 2022 and beyond. I truly believe now, even when things are so dark, that there are years more of those good times to have with my husbands, my friends, and my lovers, old and new.

I suffer from a bunch of annoying illnesses, but they are not my entire being. They take a lot of my energy, yes, but they don’t have as much of a stronghold on my joy as I’ve let myself believe. I can both have and be fun. I am allowed. I am worthy.

The second thing that’s been helping, and feel free to laugh at me for this, is weed. Wait, sorry, my bad, I hear we’re calling it cannabis now.? I’ve hated weed forever and still do in most forms, and it’s not made any better by the millions of people who say to me, immediately upon hearing I get migraines, “Have you tried weed?” Yes, Brenda, I have. I wish I liked it; would’ve made me a lot cooler in school, according to Matthew McConaughey. To my chagrin, the smell of it makes me feel sick and nauseated. I absolutely hate smoke, and any of the edibles I’ve consumed in the past have given me such bad auditory hallucinations that I’ve ended up extremely uncomfortable, convinced it would always be a bad experience that wasn’t for me.

Plus, the taste of edibles is gross to me and I can always taste it, I promise. (Super senses and all that). Any time I’d try one of Jory’s weed gummies, I would never actually chew them. Instead I’d cut off the amount that I wanted to have and would swallow it whole. Since then, thanks to the Ontario Cannabis Store (which is honestly a sentence that I’m certain NO one has ever written), I’ve been experimenting with weed “capsules”. And, well, I’ve been high almost every single night since September. Should I be worried or concerned about that? Ehh, no? It’s a pandemic?

Besides, I have years to make up for, right?

The little indulgence of these wonderful pills has brought me so much laughter over the past few very hard months. They’ve helped me be sillier and also appreciate silliness in others, where in the past I’d have been so focused on being invisible that I couldn’t enjoy people being fun/ny. That guard that often goes up when I don’t wish to be perceived; it takes a break when I’m high. I enjoy entertainment more. I have great conversations with some wonderful friends. I laugh until I cry and have on multiple occasions since starting these pills in the fall. I couldn’t tell you the last time that happened before them. These moments of stoned fun also bleed over and help me when I’m sober too. I’m reminded that I can laugh and be goofy and find joy all the time, not only in those evening moments of relaxation. I finally get it, y’all. I just had to find “my thing”.

The third, and final, contributor helping me return to fun, well this one’s easy: sex! I’m having so more sex in the last few months than I had in all of 2021. I find myself initiating it so much more with both Steph and Jory, despite the times when I might feel physically miserable. Before I was always convinced of the fact that I had to say no to their advances because there was no way I could actually a) be a good lover anymore and b) enjoy myself, thanks to whatever head or body pain I was afflicted with. It would be too disappointing for them as they would sense how hard it was for me. For too long, sex at home felt like an obligation. There hasn’t been any pressure from the husbands, no this has been a self-induced pressure. It had nothing to do with how I felt romantically or sexually about them – which has always been great; it was all me. The longer my pain went on, the worse it got over the years, the more hopeless I felt, and the more it became my identity. I was far too often convinced before – and also very ashamed – that having sex with the pain I was suffering from would be too disappointing for them as my days of being a fun lover were obviously in my past. Oh how wrong I was!

The idea of having to be sexy when I constantly felt like a broken “annoying potato of burden” was almost impossible for me to wrap my brain around. It’s easy to blame a drop in sex drive on the pandemic, but that’s only been 2 out of many more potato years.

Thankfully, with a return to outside dating my submissive side is being reborn causing me to remember all of the different ways that sex, and more importantly Me having sex, is great. (Look, I didn’t write my Yelp reviews but I trust them). I didn’t think I would ever reconnect with that side of me; it felt lost forever. Now that I’ve discovered it’s still there, I get to finally enjoy my sexuality at home with my two wonderful anchors a lot more than I let myself before. I am a very sexual being and also very in love with and attracted to them both and am reminded of the individual sexy bonds I have with each of them. It’s so wonderful to not feel this overwhelming sense of dread about an activity I once loved because I felt like I would ruin it. We can choose fun together and experiencing that again is glorious!

Partially responsible for the reconnection with my sexuality and kink is the new (younger) men in my life. Whether in person or by text, they seem to be convinced that I’m awesome, telling me as we collapse in a heap, or when I give them a very suggestive smile, or as I slip slide into their DMs. According to them, I am not a boring baked potato. I am a vivacious, attractive, powerful woman who knows what she wants and goes after it. According to them, and I trust them as I have excellent taste in humans, I am, for lack of a less obvious word, fun! I know Steph and Jory think this too, but there really is something unique about hearing it from someone who doesn’t know you that well. To think that “fun” could be the version of myself that I’m finally putting out there, it’s remarkable.

I’ve had a lot of great sex in my life but I’m really feeling so much more confident in the bedroom now. It’s more than simply a return to self; it feels like a journey to finally meet my true self. I’m having great sex everywhere now and, I have to believe, that at least 50% of the reasoning behind that is because of me! I remember now how amazing sex and kink can be; how fun it is to get absolutely railed and to flirt. I remember how much I like shaking my butt, saying “Let’s do it!” in the absolute cutest voice I can do and how good it feels to reconnect with my husband loves or to discover new lovers.

I’m remembering how to be the fun person I thought was lost forever, a little older and a lot wiser.
I’m learning how to go after joyful experiences that I want for myself and others.
I’m finally seeing the fun offered to me by everything and everyone without layers of pain distorting the view.

It’s pretty great, y’all.
Thanks, as always, for reading. <3

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Finding & Creating Joy

Today I just need to write. It might not be very well thought out or edited, but hopefully writing this will get it out of my head so I can focus on the next crisis:

I don’t think it would be too far reaching to say that joy is hard to come by nowadays. We’re almost 2 full years into a global pandemic and Omicron is swiftly ruining holidays with extreme speed. It is not at all easy to be happy right now, never mind “festive”, and yet we’re still out here trying because what else is there? Christmas is coming up and advertisements make it seem like business as usual; but is it really?

In 2020 I was so excited for this year’s holiday season, expecting that we’d be back with friends and family in person again. With talks of a vaccine on the horizon, it didn’t seem at all plausible that we’d be spending yet another December held captive by Covid’s spell. And then, almost a full year after Delta inserted itself where it certainly wasn’t welcomed Omicron arrives. I’ve been in denial ever since, even when I recently ended up having to cancel my trip home to England thanks to new isolation rules coming into effect the day I would have landed.

I find it just about impossible to believe that this variant is taking over the planet at such rapid speeds. It’s all changed so quickly. We know when the pandemic started but we have zero idea when it will end. Only a month ago there was talk about things getting better. Everyone had more hope. It was easy enough during the first lockdown to stop dining out, stop shopping, stop seeing people. When we were completely unable to do things, at least we knew the score. It sucked a lot, but it had a definitive start date. Every beginning has an end, right? Not so much when it comes to Covid-19. How soon is too soon to drop certain safety protocols? Can we plan that social gathering? Can we afford the rising cost of everything? Should I really hug that friend or go to that new restaurant or go the game? What’s the right thing to do? What’s the wrong thing? We’re back to doubting ourselves and our own risk tolerance.

Just like before vaccines, we’re back to living in extreme uncertainty. That Mexico vacation I was ready to book in February? Likely going without that again, though my constantly pained body requires intense sunshine to take pause and recover. That casual Christmas drop-in event I bought too much food for this weekend? Likely cancelled. Seeing family around the end of the month? Likely nope. Everything is constantly up in the air and yet we’re still expected to perform. To create. To put on a happy face. To do all of the things that were already too much for our nervous systems before the pandemmy even existed.

I think we’re all a bit (a lot) shell shocked right now due to this new variant blindsiding us when hope was returning. In non vaccine-starved countries we were supposed to be getting excited for boosters, booking winter holidays, and reuniting with long missed friends and family, eating just enough mini sausage rolls and rum with egg nog to temporarily forget about this whole mess for at least a few hours. Viruses don’t care how much you missed your family though. They don’t care about your mental health. They don’t care that the weight of everything is burning you out, making everything 10x as hard as it should be, with no end in sight. In fact, they don’t care about you at all.

On top of Covid, the world is burning and flooding and twisting and blowing. The visible effects of climate change are honestly terrifying right now and the refusal by those in power to take action is equal parts maddening and heartbreaking. We have the answers to fix so many problems in the world and our societies and governments barely ever make change. It’s one step forward, three steps back more often than not lately. To try to live and function in this world as a compassionate person, surrounded by people who don’t care about anyone but themselves; it’s a constant mountain of a molehill to climb. The exhaustion is just never-ending right now. If you’re feeling that, my gosh know that you’re in the norm.

So we’re likely losing our holiday get togethers. Some will also literally lose people they might have seen at theirs. Suicides are up. Drug overdoses are up. Relationship tensions are up. Burn out is up. It’s more than ok to not feel festive right now; really it’s ok to admit that it’s hard enough to feel anything positive at all. Me? I’m feeling helpless and claustrophobic. Constantly aware of the growing lack of clarity. The lack of certainty. Getting mentally stuck on the fact that the world has changed significantly more than I think any of us can actually realize. Fighting with my brain when it tries to remember the world before Covid and starts to fritz out because it feels like another lifetime.

Outside of mental health, the levels of pain from my illnesses have been at an all time high lately. I’m afraid to use my body like I used to and feeling incredibly trapped by that lack of confidence. I want to be strong but every single movement now hurts thanks to the constant stress my nervous system is fighting. How can I voluntarily lift the weights I so used to enjoy when, even just the empty motion can cause a pain flare-up that lasts for days? My energy is long gone, making happiness often feel like an impossible target. That energy loss is a million times larger for healthcare and other essential workers. For parents, for teachers, for students. For anyone carrying additional loads thanks to this pandemic. How are any of us supposed to to exist in this constant state of purgatory? 

To be perfectly honest, I have no idea. We keep going because we must, I suppose. I have no vision of the present that doesn’t involve suffering somehow. Life will always have a lot of heartache in it; that’s just how everything has always worked. The weight of that heartache at the moment though; none of us should be carrying even a tiny portion of it. It’s so very heavy that finding joy nowadays can feel like a hard to reach goal. It used to show up randomly, in pure moments of freedom, but now it has to be mined for, like a tiny gemstone at the bottom of the deepest cavern. Or the smallest piece of gold in them there hills that you have to swim down and down and down to retrieve.

And what is joy, truly? Is it an emotion that everyone experiences the same way? Is it an umbrella term for so many different versions of happiness? Of love? Is it natural? Can we manufacture it? Is it expensive? Can it be free? Why do some people feel more of it than others? And how can we harness it to fight the melancholy that is existing in the world during this horrific moment in time?

I don’t know what joy looks like for everyone else but I can tell you how and where I find it and sometimes where I have to forge it on demand. I hope that maybe my non-exhaustive random list of things I try and find joy in right now will help you notice more instances of it in your own lives, big and small.

We have to do absolutely everything that we can to not only feel joy nowadays, but also to create it and to care for it as a community. The world is trying so hard to take it from all of us, and we must persevere together to create joy in as many ways as we can. It doesn’t have to be big; to be extravagant. It can be a sound, a smell, a feeling, a texture, a taste. It can be a single instance in time or something you do repetivitely.

The struggle we face right now makes it harder to see the forest for the trees. It’s there though. I promise you.

If you’ve made it this far, here’s a sample list of where I find joy when I’m able:

  • The almost impossibly soft spot of fur behind every cat’s ears;
  • Sunshine through a winter’s window;
  • Validation from someone I lust for and / or care about;
  • How we always prep each other’s toothbrushes before bed;
  • Ice cream;
  • Photos of my favourite people. My favourite places;
  • A client securing their next home with my help;
  • Dogs. Do you ever just look at dogs?
  • My 12 foot skeleton dressed up as Father Christmas and the smiles they brings people;
  • When I’m an absolute trollop on my close friends list and a select group of people respond with continued enthusiasm and encouragement;
  • Specific male friendships;
  • Horror movies;
  • My new love of THC pills, after decades of hating weed;
  • Watching Steph sit happily in the sun on his lunch break when it’s 0 degrees out;
  • Listening to Jory do anything at work where he’s extremely engaged;
  • Train to Mexico by Toby Sebastian;
  • Weekly Corrections on Seth Meyer’s show;
  • The moment my percocet kicks in and I can feel less pain for at least a little while;
  • Being able to secure those drugs that literally help me stay alive;
  • My obsession with leopard print, the sexiest neutral;
  • My new tattoos and the mistakes from my past ones;
  • When my limits are pushed and I complain though we both know I want it;
  • Being able to help people in need now that I finally have the means to do so;
  • Lemmie and The Bird’s Papaya. IYKYK;
  • Photos of my Mum in her brightly coloured clothing, smiling wildly, even when her body hurts;
  • Jory and Steph working together, doing stuff, being supportive;
  • The thrill of new lovers;
  • Realizing that I’m the best at sex that I’ve ever been;
  • Corgis and their corgi butts;
  • Glitter nail polish always;
  • All of the colourful things in my house that are so pleasing to look at;
  • Brightly hued eyeshadow and long liquid wings;
  • Visits and gossip with my osteopath;
  • Despacito forever;
  • Any and all of my sexy playlists;
  • The relationships I’ve deepened during the pandemic;
  • The feeling of being truly satisfied and also challenged in my career for the first time ever in my life;
  • Baseball. And Teoscar Hernandez;
  • Wait, I forgot George Springer;
  • Hang on, I mean the entire Blue Jays team, let’s be real;
  • The way Sherry (cat) asks us for her bird TV show or to be played with or for food;
  • When Ruby (cat) comes to sit next to me on the couch, waiting for me to rub foreheads with her and scratch behind her ears;
  • Having the time and energy to help people with housing questions;
  • Feeling desired;
  • Intimacy in its many forms;
  • Anything and everything that raccoons do;
  • Coming home when crossing the tracks and not getting stuck behind a train;
  • The simplicity of Weetabix and blueberries;
  • Some big (secret currently) family news. No I’m not pregnant;
  • Watching my framily as parents;
  • Driving all over the city. Learning so many new favourite spots;
  • The attention of kind but stern attractive men;
  • Thoughts of femme lips, femme eyes, femme touch;
  • When Steph and I got high last week (related, he never ever does), and how long we laughed at him asking if one of the ingredients in Ryvita Snackbread was … bread;
  • Seeing more people than ever finally start to live their truths; one silver lining to the panini;
  • Underwear and a inflatable T-rex head;
  • Discovering the non-monogamous relationships and feelings I wished I’d had the first time around;
  • Singing Meatloaf songs at the top of my lungs;
  • Booking our booster shots;
  • Beginning the process of hopefully getting my ADHD diagnosis;
  • Recognizing my mistakes and focusing on what I can learn from them;
  • Super fresh McDonald’s fries;
  • Grapes. Do they know how perfect they are;
  • Remembering my accomplishments. I wrote a book! I created a conference! I built a community;
  • Accepting how much I love astrology;
  • Cinnamon and smiles and compliments;
  • Kink;
  • When people in the fast lane actually move out of my way before someone impatient goes around them;
  • Mini candy canes, but especially the ones that have been aging for a few years to the perfect level of softness;
  • Extremely vulnerable conversations with people I treasure;
  • Letting go of people that I don’t;
  • Working with Jory to help understand his autism and how we can be better together;
  • Noticing how I’ve changed;
  • Crusty bread, butter, english cheddar, and Branston pickle;
  • Lingerie and the requests that go along with it;
  • Multi-coloured pens;
  • Heated seats in the car;
  • 90s hip-hop and R&B;
  • Compliments from fellow Realtors about my professionalism;
  • Multi-layered folded chips;
  • Being more intentional about my music choices;
  • Wellington Paranormal;
  • And, finally …

You, if you’ve made it this far. You deserve all the joy you can find.

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Making Peace With My Meatsack

Content warning: This post contains multiple references to weight loss, working out, diet culture, suicidal ideation, chronic illness and pain, and self-image. Please keep these in mind if choosing to read.

I don’t want to write this, but I need to. It’s always been so much easier for me to talk about my love life than it has been my body. I owe myself this post though. I owe myself the release in putting it out there. Perhaps by sharing these feelings they will hold less power over me. Hopefully there will also be some of you who might end up feeling less alone after reading this. Phew. Here goes.

Two years and four days ago, on November 15th, 2019, I had a gastric sleeve “weight-loss” surgery. I had never considered a sleeve before until the year following my pacemaker (PM) surgery on November 19th, 2018. The PM was supposed to improve my quality of life. For almost two years I’d been dealing with getting short of breath when exerting myself. At first it was just occasional, climbing a few stairs, doing some squats, and it would go away. Eventually it became more constant, making it hard for me to breathe while going for a 600m walk around the block. The PM was implanted to fix that and yet I still felt like absolute trash for almost all of 2019.

A full year passed before my pacemaker clinic admitted their error; they had a setting wrong. A quick little bleep bloop hack on the computer and I no longer got short of breath from walking a few feet. In an instant everything was better, but I’d spent a year of my life feeling so embarrassed. I believed them when they said it was my fault the PM didn’t fix everything because I was out of shape. I was out of shape, even with going to the gym frequently and I was fat, so it must have been true. Their gaslighting really messed me up and increased my disdain for this body. Maybe if they’d realized their error (apparently a common error, according to the “Young Pacemaker Patients” Facebook group I’m a part of), I wouldn’t have felt like having weight-loss surgery was a last resort to help me at least get physically smaller so I could breathe again. Instead, I had the sleeve surgery one week before the PM appointment where they basically said “oops!”

From the very beginning, I’ve insisted that I didn’t have the sleeve surgery to “get thin”. It wasn’t about becoming a calorie-counting diet-culture obsessor. I was ok with still being fat, still being curvy, still having a belly. My motivation was weight-loss but I believed that my main focus was dealing with the logistics of being fat in a non-fat friendly society and the fact that I could barely move, even with an electric heart that was supposed to fix me.

When I decided to have the surgery I didn’t hate my body but I did hate how it affected my interactions with the world. I hated sitting on the TTC and trying to slide my extra large hips up the wall, hoping that an incredibly small person would sit next to me so I didn’t have to feel guilty about overflowing into their space. I hated flying solo without one of my smaller partners next to me so I didn’t have to worry about taking up some of their seat too. I only ever asked for a seatbelt extender the one time, stole it, and then never put myself through the embarrassment of asking for one ever again. I hated that Steph would hit my hips while driving when I was in the passenger seat and he was changing gears. I hated that I used to start dating messages with “Just want to be sure that you’ve seen my full body pics” so that no one would tell me how fat I was to my face upon first meeting. 

Society hates fat people. I do not hate fat people, but was I sick and tired of being one? You bet your ass. It’s exhausting living in that world, especially when a literal computer setting had me panting like I’d climbed the CN tower when I actually just crossed the street. I was frustrated, embarrassed, and felt like I had no other options. 

Most of all though, I resented my body. I resented that pain took away from confidence and kept me trapped in my skin. I resented the fact that I was born with shitty metabolism. I resented the fact that I had to be excited about ugly floral options at the few main clothing stores that cater to larger bodies. I resented the fact that other people’s genetics didn’t affect them this way. I resented that so many “normal” people got to move through the world without ever considering how physically (and mentally) challenging it was to do so as a fat person. That’s not to say that smaller people don’t suffer with their own body dysmorphia; people of all shapes and sizes do. That’s a well established fact. But imagine taking a happy picture of yourself, sharing it online and being told that you’re promoting obesity, simply for daring to exist.

I envied the fat woman who feels comfortable (and looks stunning) in her crop top as I grew up long before that was socially “acceptable.” I envied the fat person who felt comfortable eating in public because, even though I fight against it, I still have the instinct to hide when feeding myself. I envied the fat people who showed their entire bodies on the internet without filters, without twisting into a more “acceptable” shape so as to not offend others. 

Occasionally when I look at other fat bodies, I see sad eyes that feel so familiar; someone else who feels trapped by an unwelcoming world that wasn’t built for their build. But, more often than not nowadays, I see peace that I long for myself. I also see beauty. I don’t see my years of disordered eating or apologizing for my body when I look at someone else. I don’t look at other fat bodies and see the struggles they’ve had in a change room, trying on something that should fit but doesn’t because sizing is a nightmare. Instead I see people reclaiming the word fat from being an insult to simply being a descriptor. I see more and more fat liberation activists, fighting for less discrimination against us. I see fashion changing and expanding. I see more, though not enough, fat people in media. It’s only baby steps so far, but I see a world that’s slowly changing and giving me a little hope.

I probably over explained myself there. Truth is, I know that there’s a lot of stigma around weight loss surgeries. The haters will say that it’s the easy way out. (It’s not). My fellow activists might say that me having surgery means I hate fat bodies. (I don’t). However, after that year post PM implantation of blaming myself it felt like the only option for me at the time to be able to move and breathe freely, albeit an expensive one. It was my first year in real estate, I had just sold my first house, so within just a few months I shelled out $17k of my own money and got it done, because waiting the maybe 2 years to get it free through OHIP felt impossible.

I lost approximately 90 lbs in the first 9 ish months and then I hit a plateau. I could talk about all of the BIG emotions that I went through that first 9 months, but it’s the time since the plateau that I’m focused on today. We all know that 2020 was a shit show, and said shit show continues into 2021 and will likely keep going into 2022. If you live in a non chronically ill body though, you might not realize just how much the effect that all of that stress can have on a body with the most sensitive nervous system out there.

The pandemic for me has been one gigantic fibromyalgia and migraine flare-up. A few small breaks here and there. Some months that are “ok”, but more months than not that are really, really hard. August to December of 2020, or hurricane season” was my almost breaking point. I felt trapped by my pained body, claustrophobic just existing. I had no plans to kill myself but I honestly resented that I could never go through with it because getting through each day felt absolutely impossible. The timing of this very large and very persistent flare-up aligned with the time when I started having more and more trouble feeding myself. And when I have trouble feeding myself, I tend to eat nothing for a while and then carbs and sugar when I realize I’m hungry. There were multiple days when I self-soothed with ice cream. Heck, I could eat some ice cream this very minute.

Now, I will never be someone who believes in restrictive dieting. I will never say that I’m going to cut out ice cream. Can you even imagine? Me? With ….. no ice cream? Trust me, that would be a topsy turvy time in history. I can’t lie though; growing up with media that told me that you must eat like a rabbit to be worthy, it fucked me up. On the flip side, there’s also the body-positive movement telling me that I can eat whatever I want and don’t have to participate in diet culture.

Can we be real and say that it is honestly very hard to live in between those two ideologies? On one side you have to be small to be inherently seen as good but on the other side you deserve whatever you want to have. So I’d self-soothe myself with sugar in the evening because I believed that I deserved it, but in the morning I’d have regrets. Bigger than regrets though, is the resentment. I began to realize that I was attempting to distract myself from pain in any way I could. When you’re hurting so much that you’ve lost the will to live, it’s very easy to get lost in the dopamine rush that comes from some mint chocolate chip. When you’re so exhausted from the pain and the stress that you can only manage crackers and cheese for lunch, it’s very easy to convince yourself that you’re listening to your body’s needs and making the right choices. “At least it’s food, right!?”

Trust me. I don’t believe that crackers and cheese are a wrong choice all the time. I do believe in indulgence, in hedonism, in taking pleasure from what we eat. I believe that all people deserve to not only enjoy their food but truly experience it. Could I make better choices for myself? Absolutely. And I haven’t been. Plus after having the three of us all working from home since March of 2020, I am so tired of food and wish that it was a pill we could take every day so I could just stop thinking about it. Because, and here’s the big truth that I’ve realized, now a full year and a couple of months into this apparent “plateau”, I am terrible at managing my eating and it’s only gotten worse. Having a tiny tummy means I often don’t need full meals. I can fill up relatively quickly, and speed is key when you’re having a hard day mentally and know you need to put something, anything in your face hole. 

Admittedly, I am not functioning very well in all aspects of my life. Some are going very well. I’m getting my work done and doing a great job, yes. I’m managing multiple (hopefully) successful relationships, yes. I’m making time and space for friendships and being more honest than ever before, yes. This mental shift away from chronic pain being my identity and simply something I deal with, which has strangely led me back to dating, it’s going really well! How is my actual self-care though? One look at the piles around the house that used to last a few weeks and now sit there for months at a time will tell you that I’m not taking very good care of myself mentally at all. I’m indulging in dopamine rushes however I can get them and that has completely messed up my relationship with food.

For the first year or so after the sleeve surgery, I didn’t have to try too hard. When they remove 85% of your stomach you really can’t eat very much and the weight starts to fall off you. I also could barely handle sugar for the first 10 months, until, well, suddenly I could at the very same time that pain became unbearable in 2020. I’ve tried to cut myself some slack, said that it’s only temporary as I deal with the stress of the pandemic, but it’s been over a year now. I have been functioning poorly because my ADHD masks have failed me and I need help to figure out how to move on from here.

I’m in the early stages of hopefully getting an ADHD diagnosis, but I’m 100% sure that I have it. What does this have to do with my surgery and hitting a plateau? Predictability. A Dorito is always reliable whereas a celery stick isn’t and I even legit love celery. A plate of crackers and peanut butter is exactly the same every single time, but sometimes my protein shakes make me feel ill so I might stay away. The pandemic has made everything harder and that includes navigating taking care of myself physically while dealing with these symptoms becoming more prevalent in my day-to-day. The more I learn, the more I realize just how intrusive ADHD can be when it comes to food. 

Familiar textures are attractive to me when it comes to food, thanks ADHD. I also hyper focus on work and forget to eat when I’m actually hungry, leading to eating too much of not great choices later. I can’t meal prep to save my life, unless it’s for maybe 3 days at a time, once every 5 months. But the biggest challenge is that I sometimes use food to distract myself from pain. On one hand if I can make myself feel sick with some snacks, maybe I can just feel that sensation instead of the migraine. (Spoiler alert: I literally always feel both and yet I still do it constantly). On the other hand the dopamine rush of something reliably tasty wins out with me every single time. I have zero impulse control.

I have a lot of shame about how I spent all of that money and only lost so much weight. I know that I told myself that it was fine if I didn’t get super skinny, that I was ok with always being curvy, but I would be a liar if I said I hadn’t hoped I would be smaller. I’ve existed in a fat body my entire life; even if I didn’t say it out loud for fear of hurting someone else’s feelings, I was secretly excited to potentially exist in a small one. I was excited to become a gym rat again after a few years of not being able to move much at all. I wanted to be the hot girl with the pretty face AND the hot body. I certainly didn’t anticipate a pandemic rolling in and making everything so much harder.

When I see other people having the same surgery and losing weight just fine during the pandemic, I forget that I’m chronically ill and hurt a lot. I forget about ADHD and that I’m always exhausted. Heck, I forget that I had some hard months where I wasn’t sure I would survive – and literally only did because my doctor trusts me with opioids. Instead I see other people succeeding and tell myself that I’ve failed again. That this should be so easy; I’m obviously just not strong enough to “go all the way”, whatever the fuck that means.

For months and months I told myself that I was doing whatever I could to survive 2020 and then 2021. I certainly believe that we should all extend ourselves this grace. We all self-soothed during covid; I mean how could we NOT? Lots of people gained weight during this time and, while I didn’t, I stopped losing which is kind of the same thing after this surgery? I’ve tried telling myself that it’s ok because I never planned on being super small anyway; I just wanted to be strong again. Truth is though, I’m failing at that too because I’ve become too afraid of exercises that I’ve always loved hurting me now. My body reacts so intensely to absolutely everything that I’m afraid to be starting from the bottom one more time. I’m afraid of having a slightly good day and overdoing it, because my body doesn’t do consistent process. One day a 15 lb weight might feel fine. The next time I might only be able do lift 5 lbs. 

This inconsistency has kept me from a lot of movements that I used to love. I feel like all of the energy I used to have for working out is gone. I can barely keep things tidy anymore; how can I expect to have any energy for weights at home, never mind at the gym? When I combine this fear of movement with my current lack of ability to truly nourish my body, I feel defeated. I am embarrassed that I stopped losing weight, (even though I also am very proud of what I did accomplish). I don’t allow myself any grace for being chronically ill … during a pandemic … with all of my ADHD masking falling to the wayside. I do wish I was smaller and that I didn’t just stop at one number. I’m mad at myself for what I’ve seen as failing. For spending seventeen thousand dollars and still having this belly and this ass and for not working out on the daily which would literally be impossible for me right now and yet I’m still mad about it.

I said it wouldn’t matter if I was still a big girl after surgery, but the truth is that it does somewhat and I hate that it does. Even though I know what I’ve been up against, I’m extremely disappointed in myself. I’m embarrassed to still have a belly; I hate feeling it hanging there when I’m lying in bed. I hate how it influences what clothing or lingerie I feel comfortable in. I hate that I have loose skin on my thighs instead of strong muscles that I should have been building all this time. I hate that my bum looks like cottage cheese. I hate that I was so convinced I was going to become something else and that this global pandemic has turned me into not that person. I hate that the joy I felt at being smaller when I was finally able to get rid of so many clothes and buy new ones from multiple stores has been replaced by feeling big again at the same size for a year. I hate that I have anger that doesn’t have anywhere else to go so it comes back to me. I hate that I have any of these anti-fat feelings in the first place!

Let me be clear though. I don’t actually hate my body nor do I hate myself. All of this anger also comes with a side of empathy for what I’ve dealt with, especially since I’ve realized the extent that ADHD has had over my ability to take care of myself. I may end up staying in this particular version of my body forever and I am ok with it, even if I often feel angry about it too. My confidence levels are still high and I’m honestly ok with having insecurities about my body parts still. I’ve found a lot of power in being able to name them, especially when with new people intimately. If I tell you that I’m a bit embarrassed about my belly it means that you’ll understand if I have a slightly odd reaction to it being touched. We tell each other when something affects our physical health; why not talk about our mental health this way too. Insecurities don’t have to be our rulers. I wish I didn’t have them, but I can co-exist with them at the same time.

So now that I’ve written it all out, I’m sitting here wondering what my point is. I’m honestly not sure but it did feel necessary to share. This anger and resentment and frustration isn’t doing me any good as it resides secretly inside of me. I can pretend it’s not there all I want, that I’m all for “fat liberation” and “body positivity” and “health at every size” for not just others but me too, but only by truly acknowledging it can I help myself find freedom from these feelings. I don’t think this is it for me. I might always be a bigger woman but I also believe that strength building movement will return again. That I will one day be able to get those muscles back that I’ve missed for so long. Now that I’ve realized how much ADHD has been affecting my eating severely for the past year, I can take steps to nourish my body, working within that framework. This is simply where I’m at right now, but it’s not the end, it’s yet another beginning. 

Now that I’ve named the battle I’m fighting, I do believe I can make peace with this meatsack of mine.

I didn’t start a global pandemic.
I didn’t ask for chronic illness.
I didn’t cause my shitty metabolism.
It’s not my fault that things are harder.
It’s ok to wish things were different.
I can and will forgive myself.
I am worthy as I am and however else I will become.

You are too. Thanks for reading.

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Comfort/Able

On even the softest pillows, existence still aches
Relief remaining a forbidden far-off fantasy
Aloof. Distant. Just so slightly out of reach.

This body, these bones, this supposed thick skin
Rarely, if ever, understand or believe in peace
In charge, a world war of hurt, the spotlight stolen by pain.

The head, sliced open, nerves laid bare to the world
By the sharpest of tools, or gentlest clouds in the sky
So bright, so loud, so often, so … much.

A rare commodity these days, it seems
Comfort begins sneaking into private moments
With hair in hands, on throat, the equator trembles.

One slow glance, a soft but stern tone
The mind empties, pain flows away like lavaCould this be the new way to feel softness? To feel safe?

Fingers trace tattoos like a map searching for treasure
Eyes lock me in place, cannot move, cannot speak
Firm tenderness replacing the infinite envelopment of misery.

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Today’s Confession

Samantha Fraser

Hey Friends, I’ve been doing some big thinking lately about … EVERYthing & I have a bit of a confession to make. Some of you know this already. Others will wonder why I’m sharing. Truth is, I feel compelled. Like I’m shedding my skin.

We were a little bit into Tell Me Something Good, the sexy storytelling event I run (ran?) with Claire & I started to notice it. The world I had advocated & fought so hard for – a world where people could explore open relationships without stigma – it was blooming.

I looked around at all of the amazing people carving their own space in sex ed, thinking I would feel proud but instead I felt insignificant next to their growing success. My entire life, jobs, relationships, etc were under a microscope for years for me to just become forgettable? Was it all in my head? Maybe. Who knows.
Things were going well in my life but still I was disconnected from myself. We would have parties that would often turn into sexy parties for some, and I got very prudish about it all, unlike past Me.

That was partially because I was sensitive to my more vanilla guests who didn’t necessarily consent to being at that type of party. But also? I felt like no one wanted to come see us; they just wanted to fuck in our basement & go home. Again, I felt forgettable.

I rained on parades. I avoided sexy opportunities as I didn’t believe they were real. I let this entire concoction of insecurities rule how I treated friends. I wanted so badly to be who I actually finally am but she was just out of reach.

In 2013 I had my heart broken badly because I’m a moron, and leading into 2014 I was stood up maybe 8 times which destroyed my confidence. But I also had lots of great times, partners, & experiences that should’ve balanced it out.

I almost died in February 2014. Not an exaggeration. Not 1, 2, or 5, but 17 pulmonary embolisms from a slip in the tub. The doctors said I was so close to death they were amazed I survived. Every single one of my illnesses now? They come from that single trauma. That trauma that I brushed off because, well I didn’t die, did I? No, so I should’ve gotten over it! Compartmentalism. Move on. Be strong. It’s “who I am”.

I thought I got over it, but the evidence is clear in my body’s response since then. That was trauma that I didn’t ever process. Instead I became ruled by feelings I didn’t even know were there. Essentially I gave into who I thought I had to be after that & illness (& the long search for a diagnosis) became my identity.

I don’t know how much almost dying really changed me, but the evidence suggests a lot. So for this, and more, I am sorry. I’m sorry to the friends that I couldn’t show up for truly because I turned that trauma into awkward and uncomfortable behaviour. But mostly I’m so SO sorry to myself. I let myself dull. I lost my sparkle. Others might have still seen it, but it was much darker than it had been, I promise you.

And now? I am back, but better than I was. I’m here to show up for you AND for me always. I’m here to listen and learn everything you want to share with me. And I’m here to share it all with you too. No holds barred. Confident vulnerability, my favourite. This is 100% me, with the walls down.

I am so excited to finally shed this weight of medical trauma, slowly but surely. There has been a lot of it since then, but it no longer rules my whole soul. My light is returning.

And if you need a little sparkle because maybe you’re feeling dull sometimes? You can have some of mine. Let’s do this. Together.


Thanks for reading. I hope it made sense.

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Welcome Back, Self

Samantha Fraser

I am extremely enthusiastic right now about, well … everything. To the point of being annoying, I’m sure, but I’ve never believed in subtlety. The “completely out of left field” life-changing mental shift that I am in the middle of has me wanting to be everywhere, to see everyone, and to tell everyone what they mean to me.

Life is too short to not go for it. To say the things. To do the stuff. And strangely, while patience has never been my area of strength, I’m also finding myself making space for it now. Many things are worth the wait. Because for Me, now, it’s no longer about rushing to do everything on a rare “good” pain day. What if that day doesn’t come for weeks? Life still gets in the way of life. Extreme pain and fatigue days are still going to be frequent. Busy work periods are still a thing.

Somehow though patience makes the moments even better now. Because I’ve realized that they can happen even when I’m hurting. I couldn’t see how to make space for that before but it’s no longer the boss of me. If I’m going to be hurting all the damn time anyway, I might as well have some fun.

For far too long, pain has been my entire existence, wiping away who I used to be before. I have felt like a shell of a person, accepting that “this is just my life now”. Years of multiple diagnoses, doctors gaslighting me, months of all day long excruciating pain, and barely enough energy to even exist, these things have felt permanent.

My illnesses have defined me. They have influenced how I interact with friends, with lovers, with family, and the world. Pain and suffering have so deeply become my identity that I have dulled myself, and taken away my sparkle.

Being seen recently, *truly* seen by someone important from the before times, it reminded me that there is more. That *I* am more. That life is more. And that connections are important. That following your heart, and sometimes your bits (yes I said it, have we met?), is worthwhile. That there is joy to be found in other places than *just* baseball, cats, movies, and all of the things one spends money on when faced with eternal doom and gloom.

I will still be grumpy and sad when hurting sometimes; this isn’t a post about happiness. This is about being able to accept it more. To doing things anyway, even when it’s extra hard. Because life is worth living.

In the past few days I have reconnected with people whilst being in tremendous pain. I have gone to places that physically hurt, and had to take extra measures to protect myself. But, as much as I felt the hurt – and feel it intensely now as I write this – it’s secondary. It doesn’t deserve centre stage.

Because it isn’t who I AM. It’s what I deal with.

I get it. If a fellow spoonie came to me and started preaching about “just doing the things even when it’s tough”, I’d want to punch them in the face. I won’t do that to you. I honestly don’t have any advice on how to make your own mental shift. Mine has been a complete surprise, SO complicated, and includes lots of overlapping feelings about identity, (open) relationships, kink, survival, and of course, pain.

There is no magic button to suddenly convince a depressed brain that it should feel better now. I’m riding some highs but I know there will still be lows. But deep within, things have definitely shifted.

There will be plenty of times when pain will continue to win. When my enthusiasm will be defeated by its invasive and hateful nature. I won’t always be able to do the things or see the people. And there will be other times when I will be able to, but it will be much harder to get through than I let on. No amount of enthusiasm can cause it to go away.

But it no longer gets to be captain of my ship. It’s no longer permitted to destroy my sparkle. I have a burning desire to reconnect with those I already know, to connect with those I don’t, and to be open to whatever experiences, – platonic / sexy / otherwise – come along with that.

I feel less awkward, more sure of myself, and for once, excited. I am not only the Me from before, but I am the Me who has lived through a million more traumas and refuses to keep letting them win.I’m still tired and suffering, but I finally also feel alive again.

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Who I Was Is Not Who I Am

This week has been tough. Physically, I’m still going through an awful migraine flare that’s almost reached two full weeks as I type this. Mentally, well, I’m sure my last couple of posts reveal my secrets, but in case they don’t, melancholy would certainly be the right word to describe where my head is. A lot of tears have been shed this week as I’ve revisited my old self and how she moved through the world.

At first I was convinced this feeling was related solely to Tuesday’s reunion and, while there’s definitely feels to work through there, I’m realizing this goes much deeper. This isn’t about another person, whether a friend or lover or both. This is about me; the woman I was before and the woman who I’ve become.

When I started dating Jory in January 2015, most of my other flirtationships slowed down, ending soon after. He and I casually dated a wonderful woman together for a while, but eventually it became just the three of us. It was never really intended to be that way, but it seemed to work out so we stuck with it. When dating we sort of developed a ddlg style relationship. Kink with a side of care – made more important as I started to get ill.

We didn’t realize that only 2 years into the relationship that we’d all end up moving in together; like everything else, it just sort of … happened. Unfortunately, no one really tells you that, when you move in with your husband and your boyfriend into a three person domestic situation, it’s hard to continue any sexual power based relationship dynamics. There’s dinner to cook, to-do lists to write, sleeping arrangements to sort out. It became a lot less of a priority to be those people as we had a new and exciting family life to foster and grow (and also much less privacy, something both relationships need to give the other now and always).

Truth be told the last 6 years have been very hard personally and the past few days is really the first time I’m actually admitting it to myself. The intense sadness has nothing to do with my living situation; they’re both wonderful partners and any hiccups the three of us have usually get worked through pretty quickly. It does, however, has everything to do with my illnesses. Horrible medical moments that have given me a broken nervous system that’s afraid of anything that in the past would have delighted my senses. 

Looking back, 2015 was sort of the last year I had … fun. It wasn’t just my extra-curricular dating and sex life, it was everything. I could go out for drinks and dinner with friends and not get a migraine. I could attend events in support of people I cared about. I could live my life without having to consider how upset my body would get for staying out late. I was, for lack of a better word, free.

Seeing M the other night, someone I met in 2014 when I still felt both fun and free, made me realize how long these past 6 years have really been. Catching up, talking about sexy memories, harmlessly flirting, and just having a fun time with each another; I was reminded of who I was when we met. Pain was just around the corner back then but I still had some life in me to be more mischievous. 

Then symptoms started in 2015 and the next 3 or so years were filled with lots of diagnostic style appointments, an MRI that gave me intense panic and claustrophobia for 4 years, and days of trying to keep it together at my 9-5 WFH gig. In 2017 I started developing heart block. 2018 was a nightmare trying to get it diagnosed and then get the pacemaker. 2019 was spent feeling worst than I did before the pacemaker because they had my settings wrong. I had weight loss surgery that November because I could barely move on my own thanks to the pacemaker settings, which were thankfully finally adjusted. 2020, well, we know what that was. The pandemic was the start of the most pain I’ve ever experienced in my life as stress causes my body to flare up so much and no yoga or deep breathing can compete with the stress of a global health crisis. 

I’ve been so focused over these years on simply getting through each day that I’ve rarely given myself to grieve for my past freedoms from disability. I barely remember feeling less pain and it sounds impossible that I ever experienced none at all! I do sometimes have flare-ups where I reflect on how much it’s bringing me down that week, but the grief I’m presently feeling is so much larger than any random flare could bring on its own.

The grief this week is me realizing how much I am missing the woman I was. The woman who was known as flirty, as fun, perhaps even an “expert” on non-monogamy, according to local news media. The woman who had the energy to build community and host events. To push her own boundaries. The woman who was stepping more into her pansexuality, felt confident in her skin, her kinks, her gender, and her size. 

I’d almost forgotten about her, not by choice, but by circumstance. My world is so much smaller now, though I wish it wasn’t. The other night at the Skydome reminded me that I used to be more than this shell and it’s hit me emotionally like a ton of bricks.

I used to float on air when new romance came my way. Dating sucks, but it was still a fun challenge of sorts. (That is before all the apps turned dating into a swipe fest based first on looks, something that is very hard for this demisexual to compute!) I sought out people to boost me up in different ways than I got at home, while I boosted them up in exchange. I found myself seduced by new kind words, knowledge, experiences, and confident vulnerabilities. I would feel heartaches so strong that I thought I would never recover but the highs always made the lows worth it, eventually. 

My sentimentality and emotions haven’t been fed in the same way since because survival has become the driving factor, keeping everything else buried and out of reach. I used to drift off into daydreams of new people, new places, new ideas, whereas now I just drift off because the pain has a grasp on all of my focus. The range of emotions I would feel was so much larger than what I usually feel now; Tuesday reminded me of this. Don’t get me wrong; I am very in love with both Steph and Jory and am not reminiscing on past lives because of a failing in them, or our bonds. 

In fact, there are needs I used to have outside of my marriage that are met more consistently at home now, by both of my partners! The urge to meet new people is lessened, but I still miss the … variety, the opportunity. The excitement of new relationship energy. Revealing the road map to a new and unfamiliar body. Seeing myself through the eyes of someone new and learning things about worlds I hadn’t traveled to yet.  

Getting back into dating is not at all the point of this post, though I’m always open to new flirtationships because I love that. The real point of this reflection is admitting to myself that the choice was taken away from me. Living with two partners vs. one does make it harder date other people – and Jory and I have never experienced me dating someone else besides Steph since we’ve been together – but we never really even talked about it because illness took all of my energy before we had the chance. 

I went from being polyamorous by nature to being monogamous by force and now I don’t know where I actually fall on the scale.

Who knows. Maybe I would’ve stopped dating naturally if I hadn’t gotten sick. Maybe if I still had energy, having two wonderful partners at home might have meant I’d have gotten a lot more social satisfaction from friends and loved ones and all of my needs would have been met. Now those needs are ignored because the pain takes over everything. It’s like glitter that gets into everything but in a much less sparkly and much more depressing way.

The only thing I can say for certain is that I am finally, maybe really for the first time ever, openly grieving what disability has stolen. There is an anger in me now that I haven’t really felt before and I need to work through it before I figure out next steps and truly start to learn what it is I need now. People often tell me I’m strong and brave and maybe that’s true; but it feels more like I had blinders on that helped me stay alive. Had I ever stopped and truly realized the gravity of what I’ve actually lost, it might have been impossible to come back from. 

So while it hurts a lot now, the other night at the game was also a great reminder and gave me a softer place to land this week while the tears fell. A reminder that who I was can still be who I am. We are a sum of our parts, our past, our memories. I just need to accept that I can both make space for who I was to co-exist with my current self while knowing that won’t always be in my control. 

But I am more than my illness and, as much as I can, I refuse to let it continue to completely define me anymore.

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Pretty

Samantha Fraser

“At least I’m still pretty” she says silently to herself, knowing that valuing her looks is a symptom of capitalism, knowing she has much more to offer than these eyes and lips, but in that moment relying on them to help her survive yet another day.

She hates acknowledging the fake value of beauty while recognizing that “being pretty” is the only thing in her body she can still control.

Eyeliner doesn’t hurt her the way a storm can. Lipgloss only shines and doesn’t take away her energy, day in and day out. Blush helps her look more alive, especially in those moments when just living is hard. A winged eye is the perfect trick so when she catches herself in the mirror she forgets the agony for the smallest moment in time.

She is flawed and not a pro, but she still knows what colours to sweep on to make her eyes become all you can see when you look at her. She knows her lips are envied by some and desired by others, though all they seem to do for her now is form words of pain, exhaustion, and sadness, again and again and again until she’s forgotten they could ever serve any other purpose.

She clings onto these moments of pretty, never happy to remove the paint before bed, fearing that this is the night the beauty is lost forever. It is her armour, her distraction, her tool to convince all that she is and can be more than the burden she feels.

More than someone held captive by a nervous system that seems to want to punish her for wishing she could ever be something more than this again.

If you get caught up in the sparkle in her eyes, maybe you won’t notice how her pain is all-consuming. aIf you notice the highlight of her nose and how it glistens in the light, you won’t realize that her needs now are many and often. If you notice the ink on her skin, maybe you won’t notice she can no longer give you the world anymore, though she wants to so desperately, because hers has become so incredibly small.

And if you do see her for more than the broken she feels,maybe she can forget.
Maybe she can pretend. Maybe she can find peace.

Until then, at least she’s still pretty.

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